Uma and Sylvie were born in January 2006 and things seemed to be going smoothly until the girls turned one-year old. Tom & Kirsten noticed that Uma was hitting all the big milestones as expected, but Sylvie was actually losing some of the skills she'd acquired in the first year of her life. For the next year, they endured a long road of testing on Sylvie to figure out what was going on. By January 2008, Sylvie was diagnosed with Krabbe Disease. Tom & Kirsten were told that most babies who have this disease don't live past age 2.
Sylvie is now 3/1/2 and although each new day is a challenge, she brings so much happiness and joy to the family. Tom & Kirsten are stellar parents who love both of their daughters immensely. It's apparent how much love they have for their girls, and I can't think of two better people to care for and love on little Sylvie. Please say a prayer for Sylvie and the rest of the family whenever she crosses your mind.
And now...onto the photos!
1 comment:
Thanks so much Christina! We love the photos. We have a talent indeed!
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